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Trying to keep up!

5th December 2017

Firstly, thank you so much everyone for your amazing support on my last blog post. It's so lovely that people can follow my journey without me having to tell everyone over and over where I'm up to! Just a week to go now until my transplant assessment but here's just a little update on life :)


I'm struggling this week to get uni work done! My brain just isn't working properly, I keep forgetting when I'm in the middle of doing things, and I can't focus on anything. I've also been rejected for PIP for the second time so I need to appeal that, which is an exhausting process! I feel like I need a secretary to do things for me! I really don't want to drop out of uni, mainly because I wouldn't receive my student loan anymore which is obviously my main income as I can't work, but also because I really wouldn't want to have to go back to do one year once I'm feeling better. So I'm just plodding along and if I don't get the grade I want I think I'll just be relieved to graduate!

But tomorrow is a new day and hopefully I'll be feeling better, today I've been feeling sorry for myself. I'm fed up of not being able to do things around the house and spending a whole day doing nothing, it makes me feel very useless and it's so frustrating. I think that's the reason why I'm so excited for what is a really scary operation! Haha. I haven't been feeling great heart wise this week either, I've been really tired which is why I'm spending most of my time just sat around watching TV. I've also been feeling really nauseous after I eat recently, I really can't eat much now so I'm just snacking a lot, surprisingly still haven't lost a single pound!

I had to have an MRSA swab today at the GP ready for going onto the transplant ward next week, they just take a few swabs and then I have to take the report with me to Wythenshawe when I'm admitted. Usually you have the swabs done when you get there but obviously I'll be on a ward with transplant patients that will have no immune system so I can't wander in with MRSA! Then on Monday I need to call the transplant ward and find out if I need to stop taking my blood thinner because of some of the tests I'm having done, and I also need to check on Tuesday that they have a bed ready for me according to the letter I was sent (which seems strange to me by hey ho!).

Not very related to the medical side of things but I dyed my eyebrows this week so that I don't have to wear makeup while I'm in the hospital and they look so much better! I also bought a cabin sized suitcase in the Matalan sale, it was 50% off! I've wanted one for ages and when I saw it I couldn't resist, so that's what I'll be taking in to the hospital with me :)

Comments

  1. Anonymous6 December 2017 at 12:41

    Hi Charlotte
    It strikes me that far from 'spending a whole day doing nothing' you've actually done exactly what you needed to - you listened to your body, always a good start and then you've also shared your story with all of us who are reading it, another big achievement. And yes you're right, tomorrow is always another day. Keep on writing!

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