Skip to main content

Trip to Ireland!

Trip to Ireland!

27.04.18

Whilst I was on the ward, I got the all clear from my consultant to fly to Ireland for my dad's wedding! He's getting married in Ireland so I wasn't sure if I'd be able to go, or if I'd have to get the ferry, but I was told I was fine to fly! 

I had to be really organised with my pills, I had a set in my suitcase as well as my hand luggage. I thought I'd need a note to take all my pills in my hand luggage but no one at the airport even questioned them, but I brought my prescription list just in case! I had to book travel insurance in case I was ill while I was away but also because I had a biopsy the Monday before I went away, I wanted to make sure that if I was admitted and had to cancel my flights and things that I'd be covered. The Heart Transplant Facebook group that I'm on is really good for recommendations on travel insurance. The company that was suggested was All Clear but they wouldn't cover me after I filled out the questionnaire, but they suggested another company that would, and it was £67 for 4 days in Ireland for me and Ciaran. It's more money than it would be for a normal person but considering I wasn't even 3 months post op I thought that was pretty reasonable!

Friday

We flew over on the Friday, and I had to wear a mask on the plane to prevent me getting an infection. People are really funny, they don't ask questions they just stare! I would rather someone ask me why I have a mask on, one drunk man asked but I don't think he really understood haha! Friday night we had a small dinner which was lovely as I could catch up properly with Emily's mum and dad and her maid of honour Amy and some other family and family friends. Emily booked Elvis as a surprise which was great! I went to bed pretty early, I think around 11 because I knew Saturday would be an early start and I didn't want to be tired! I still can't get over how great I feel though, I was up first thing Friday, traveled on a plane, went out and about in the day and then was up all night! The only thing I struggle with still is my puffy face, I know that it's silly but it bothers me that I don't look the same when I look in the mirror, but I just get on with it! It was fun to put a dress on and do my makeup, and I feel 10 times stronger than 2 weeks ago at Emily's party!


Saturday

I didn't get up too early Saturday, I think I was up about 8, I had a shower and washed my hair and went down for breakfast. Then all the girls got ready in Emily's room, it was so much fun! We all had our hair done and I did my makeup but Shannon did everyone else's and everyone looked so pretty! 

We walked around the gorgeous grounds to have photos taken and I was just giddy all day thinking about if I hadn't had my operation yet. I was worried when I first woke up because I felt so grim and bloated but with weak legs and I couldn't imagine that just a month after going home I'd be able to go to Ireland for the weekend!



The wedding itself was lovely and I had such a great time, I was up until about 2am and even had a dance! My chest is still quite sore so I can't do much with my arms still but I just love that I can stay awake and don't get exhausted!! I had a lie down after dinner before the evening but more just to freshen up my makeup, I didn't need to sleep. I thought about my donor a lot all day, because without them and their selfless decision to donate their heart to me I wouldn't have been able to celebrate with my dad and Emily and my family because I wouldn't have been well enough to travel and I slept nearly all day before transplant, I'd have never made it through the wedding day! I also think about their family and that while I'm happy and celebrating they're in pain and missing their loved one, I just hope that they have some comfort from the fact that they've saved so many people with their brave decision. 

I want to send a thank you card so badly (the card has been sat on the side for weeks), I'd hate for them to contact the hospital and I hadn't left a letter for them. But I have no idea how to put into words how grateful I am. I'm thinking about having photos printed from special occasions such as the marathon and the wedding and to tell them that without them I wouldn't have been able to do those things. But I need to check with the hospital that I'm allowed to do that, as you're not allowed to put identifying information in your letter.

For most of May I just enjoyed the sun, chilled out at my mum's house and I'm doing lots of walking with Ciaran and making an effort to go out and be active. As much as I want to tell people what I'm doing all the time I think I'll keep my blog for my transplant story and only update when things happen that are to do with my recovery! But don't think that all I do is go to the hospital! Haha. 

Thank You again to everyone that read my blogs and is interested in my journey! I hope I can help anyone who's going through their own transplant journey, and the general public that wants to know more about the weird and wonderful world of transplant! 




Comments

Popular posts from this blog

6 Month Checkup at Liverpool

November 17th 2017 Today I was at Liverpool Heart and Chest Hospital for my 6 month follow up. I had an ECG, an Echocardiogram, and then I went to see Dr Todd. My ECG today shows that my ventricles are starting to struggle more and can't get as much oxygen around. A CT scan that I had done while I was admitted in August shows that I have enlarged lymph nodes in my chest. I've done a bit of googling and there are a few things that can cause enlarged lymph nodes in the chest including sarcoidosis and an infection. The doctors had a discussion and they think I should have them biopsied to check they're nothing scary. They're pretty confident that they're only swollen because of my heart but they have to tell the transplant team about it in case they want to investigate.  I had my DNA tested a while ago (it takes about 4 months to come back) so today I saw the genetics lady at Liverpool, Dr Mckay. She said they've found a faulty gene in me, so my mum and dad ne...

Surgeon Visit!

Hello again! Monday 18th I was back at Wythenshawe transplant outpatients to meet my surgeon Mr Venkat, there are 5 transplant surgeons so it may not be him that does my actual surgery but he is one of them and he met with me to explain further about the transplant surgery. I asked if I could record the meeting and he said that was fine, and it's a good job because he told us a lot of stuff that I can't remember already! So, first I had my bloods done, they redo one of the blood typing ones to double check that it's right and just some normal bloods like the heart failure measure BNP. So, Mr Venkat began by asking me about my daily life, things that I now struggle doing like making the bed, I don't go out of my house much and I get a tight chest when I'm not even exercising. Then he went through my three main tests. So, he firstly showed me my echocardiogram which shows that my atrium are huge! The ventricles are the muscular pumping chambers of the heart ...

Still not listed!

Friday 5th Jan 2017 I spoke to Ruth on the phone this afternoon to find out if I'm being listed and I have to wait until I've switched to Warfarin! So currently I take Apixaban (anticoagulant) because I had a blood clot in my heart, and I still take it to prevent getting another one and possibly having a stroke. Apixiban is a newer version of anticoagulant so it's a fixed dose whereas Warfarin you have to have the INR in your blood monitored and they adjust your dose and it can also be affected by certain foods. Warfarin works by blocking Vitamin K which is what clots your blood, so if you ever had an emergency operation they would give you Vitamin K to reverse the effect of Warfarin. However, there is no reversing agent for Apixaban so because I know I'll be having an operation at some point they will put be on Warfarin to ensure there's a reverse agent. This is annoying because I already knew I needed to switch to Warfarin and I could have done it weeks ago h...