Friday 30th March
I've found that I've been quite tired while I've been home, not really more than the hospital but I think it's just because I want to do more at home and I keep being stopped by having to have a nap whereas in the hospital I had nothing to do other than sleep!
I had plans this weekend to have my cousin and her boyfriend over, Em and Gidd and I didn't cancel because I hoped I'd be home! So they came over on saturday and we just had some sandwiches at home and it was lovely to catch up! I hadn't seen Emily since my first day on the ward so I think there was definitely some difference in me! My aunties and uncles came over too after seeing my mum's new house Jenny, Darryl, Paul and Sam so it was a busy day but it was lovely to see everyone and I just had to nap after they'd been!
My other aunty Annette came over from Ireland this week too with my cousin Megan so I got to see them a couple of times and my cousin Shannon too! It must be weird for people to see me that didn't see me in the hospital because obviously I look worse than when they saw me last! Because I never looked ill before my op and it was only a few weeks before my op that it got to the point where I struggled getting dressed most days and I pretty much stopped wearing makeup. But no one saw me on these days except Ciaran and my mum really because I didn't have the energy to leave the house.
It's only now after transplant that I have realised how bad I actually was before my operation, I remember I went out with my friend Nat for a coffee a couple of weeks before and I hadn't been out in days and I was determined not to cancel even though I was shattered but I didn't have the energy to put on any makeup or even care about it! And I remember Nat saying 'I can't remember the last time I saw you in jeans and not leggings Charlotte' haha. Because I lived in either PJs or leggings and jumpers. But after the coffee I came home and went to sleep, I was exhausted! I was always happy before my transplant because I have great family and friends but I wouldn't say I had a good quality of life, I was sort of plodding along waiting for my operation. I am so so lucky that I only waited a few weeks, I can't imagine waiting a year or more like some people do! Although, I don't think that would have happened with me, I think I'd have ended up in hospital on the urgent list if I'd have been waiting any longer.
Monday 2nd April
This weekend is Emily's 30th, my dad's fiance, but because the wedding is coming up she's not planned anything. So while I've been in the hospital I've been ordering decorations and messaging her friends organising a surprise party for her! So I'm looking forward to that this weekend! And I think I'll just relax and recover this week. Things at home are easier than I thought though, Ciaran's been doing dinner most nights because I can't stand up for long but I can stand up long enough to have a shower which is nice! I struggle washing my hair because my arms are sore but I don't get out of breath which is great! And I have made dinner a couple of times which is nice. I still have really skinny legs so I can't squat down to see my bunnies yet but I've sat on the floor in the kitchen with them so that'll do for now!
But I'm still pleasantly surprised at what I can do for myself! And how good I feel :)
I've found that I've been quite tired while I've been home, not really more than the hospital but I think it's just because I want to do more at home and I keep being stopped by having to have a nap whereas in the hospital I had nothing to do other than sleep!
I had plans this weekend to have my cousin and her boyfriend over, Em and Gidd and I didn't cancel because I hoped I'd be home! So they came over on saturday and we just had some sandwiches at home and it was lovely to catch up! I hadn't seen Emily since my first day on the ward so I think there was definitely some difference in me! My aunties and uncles came over too after seeing my mum's new house Jenny, Darryl, Paul and Sam so it was a busy day but it was lovely to see everyone and I just had to nap after they'd been!
My other aunty Annette came over from Ireland this week too with my cousin Megan so I got to see them a couple of times and my cousin Shannon too! It must be weird for people to see me that didn't see me in the hospital because obviously I look worse than when they saw me last! Because I never looked ill before my op and it was only a few weeks before my op that it got to the point where I struggled getting dressed most days and I pretty much stopped wearing makeup. But no one saw me on these days except Ciaran and my mum really because I didn't have the energy to leave the house.
It's only now after transplant that I have realised how bad I actually was before my operation, I remember I went out with my friend Nat for a coffee a couple of weeks before and I hadn't been out in days and I was determined not to cancel even though I was shattered but I didn't have the energy to put on any makeup or even care about it! And I remember Nat saying 'I can't remember the last time I saw you in jeans and not leggings Charlotte' haha. Because I lived in either PJs or leggings and jumpers. But after the coffee I came home and went to sleep, I was exhausted! I was always happy before my transplant because I have great family and friends but I wouldn't say I had a good quality of life, I was sort of plodding along waiting for my operation. I am so so lucky that I only waited a few weeks, I can't imagine waiting a year or more like some people do! Although, I don't think that would have happened with me, I think I'd have ended up in hospital on the urgent list if I'd have been waiting any longer.
Monday 2nd April
This weekend is Emily's 30th, my dad's fiance, but because the wedding is coming up she's not planned anything. So while I've been in the hospital I've been ordering decorations and messaging her friends organising a surprise party for her! So I'm looking forward to that this weekend! And I think I'll just relax and recover this week. Things at home are easier than I thought though, Ciaran's been doing dinner most nights because I can't stand up for long but I can stand up long enough to have a shower which is nice! I struggle washing my hair because my arms are sore but I don't get out of breath which is great! And I have made dinner a couple of times which is nice. I still have really skinny legs so I can't squat down to see my bunnies yet but I've sat on the floor in the kitchen with them so that'll do for now!
But I'm still pleasantly surprised at what I can do for myself! And how good I feel :)
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