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Life update 20/02/18


Hello all!

I've been feeling a bit more normal recently, I have to remind myself that I have to take rest days and I can't do everything that I want to do! I have handed in another essay for uni this week which means I only have one left for next week! And then I have had two deferred until August so I can start on them and get them out of the way.

I've been planning the hen do for my dad's girlfriend which is lots of fun! It's the only time that I've wished I can have an alcoholic drink since I've been ill! It'll still be so much fun though and I just have to remind myself that I'll have to sleep in the day so I can go out at night, even though I hate being left out of the daytime activities!

I've decided not to go to the Brighton half marathon now. I really want to and I'm upset that I can't go but I know I'll be shattered when I get back. Ordinarily that would be okay but because I have my essay due in on wednesday when I get back, I don't have time to sleep for two days after the trip!

I have also applied for my PIP appeal now, I have to go to a tribunal to fight my case. I know that I am entitled to PIP (disability benefit) but I don't recieve any. So I have been collecting letters from various people including university and my social worker at the hospital, they've provided me with evidence of the daily struggles that I have. It could be 6 months before I get a hearing date though! It depends how many cases are going through the tribunal court so hopefully it's not too long!

Also, I thought I'd share with you all an important date! Friday 23rd February, this friday, the opt-out vote is going through parliment. An opt-out system would mean that everyone would be on the organ donation register and if you didn't want to be you could fill out a form to take yourself off it. This is so important for the people that have just never thought about donating their organs (I don't think most young people have) and it's hoped that it will increase the amount of organs available! So I wrote to our local MP this week, Mike Anesbury, I should have got my letter in sooner so I hope he sees it in time! But just to tell him a bit about transplant and why this vote is so important. If anyone would like to join me, you can email your local MP to find out if they are attending the vote and what their views are :)

I've had some amazing comments since being in Daily Mail and Manchester Evening News, thank you to everyone that follows my story and has signed the register or just if you've read one blog post!

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